AIDS info offers the latest federally approved information on HIV/AIDS clinical research, treatment and prevention, and medical practice guidelines for people living with HIV/AIDS, their families and friends, health care providers, scientists, and researchers. AIDS info offers information on federally and privately funded clinical trials for HIV/AIDS patients of all ages and at all stages of infection. ###MON###
PO Box 4780, Rockville, MD , 20849
Disease/Disability Information AIDS/HIV Specialized Information and Referral
AlphaNet is devoted to improving the lives of individuals with Alpha-1 antitrypsin deficiency through comprehensive disease management services, clinical research administration, and consultative services. The organization also funds research and community activities. AlphaNet provides a wide range of specialized programs and services designed to meet the specific needs of the Alphas it serves. The AlphaNet Disease Management and Prevention Program (ADMAPP) provide comprehensive...
3300 Ponce de Leon Boulevard, Miami, FL , 33134
Disease/Disability Information Alpha 1-Antitrypsin Deficiency Patient to Patient Networking Public Awareness/Education Pharmacology Research
The ALS Association Florida Chapter was co-founded by patient Ann Smith in-áAugust of 1987-áas the Tampa Bay Chapter to serve the needs of those living with Amyotrophic Lateral Sclerosis (also known as Lou Gehrig's disease) and their caregivers.-áIn 2001, the-áTampa Bay Chapter-áexpanded its services to all areas in the state of Florida and became known as the Florida Chapter. The ALS Association is the only national not-for-profit health organization dedicated solely to-áthe...
3242 Parkside Center Circle, Tampa, FL , 33619
Issue Advocacy Amyotrophic Lateral Sclerosis Disease/Disability Information Case/Care Management
The mission of the American Kidney Fund is to fight kidney disease through direct financial support to patients in need; health education; and prevention efforts. Provides financial assistance for dialysis and kidney transplant patients. The American Kidney Fund offers a nation-wide, toll-free HelpLine for kidney patients, their family and friends, and the general public. Call to speak to a trained health educator, social worker and patient services staff. Our staff answers questions...
11921 Rockville Pike, Rockville, MD , 20852
Disease/Disability Information Kidney Disease Medical Expense Assistance Kidney Transplants Kidney Screening
The American Lung Association of the Southeast serves Florida, Georgia, and South Carolina with critical programs and services designed to reach everyone affected by lung disease.
2020 S Andrews Avenue, Fort Lauderdale, FL , 33316
Disease/Disability Information Lung Cancer Lung Disease Public Awareness/Education Pulmonary Disease Specialty
The Center for Autism & Related Disabilities at USF is a community-based project that provides information and consultation to individuals diagnosed with autism spectrum disorders and related disabilities. CARD-USF offers instruction and coaching to families and professionals through a training and assistance model. ###COL###
13301 Bruce B. Downs Boulevard, Tampa, FL , 33612
Disease/Disability Information Autism Spectrum Disorders Case/Care Management Life Skills Education
Provides information and resources about solutions for hearing loss, whether the person is born with it or it develops over time. Information is provided on the latest products and implants available to those in need. ###MON### ###COL###
13059 East Peakview Avenue, Englewood, CO , 80111
This Foundation is the leading organization in the United States devoted to cystic fibrosis. It has more than 80 chapters and offices nationwide and supports a network of more than 115 accredited CF care centers, which provide patients and families with vital treatment and other CF resources. The mission of the Cystic Fibrosis Foundation is to cure cystic fibrosis and to provide all people with the disease the opportunity to lead full, productive lives by funding research and drug...
4550 Montgomery Avenue, Bethesda, MD , 20814
Specialized Information and Referral Cystic Fibrosis Disease/Disability Information
The Miami-Dade County Chapter of the Sickle Cell Disease Association of America provides direct services in conjunction with the University of Miami's Comprehensive Sickle Cell Center. Medical treatment, education and counseling services are available through the Center. In addition, ancillary services such as support groups, recreational activities for children and emergency social services are offered.
1601 NW 12th Avenue, Miami, FL , 33136
Specialized Information and Referral Sickle Cell Anemia Public Awareness/Education Disease/Disability Information
Dedicated to improving the quality of life for the millions of people living with Diabetes, and providing information about current research and treatment.
200 S Park Road, Hollywood, FL , 33021
A long-term illness followed by kidney failure takes its toll both physically and financially on kidney patients. The NKF of Florida provides assistance to Florida patients in need. Requests can be made for assistance with medications, transportation to and from dialysis, and emergency one-time grants. ###MON### ###COL###
1040 Woodcock Road, Orlando, FL , 32803
Prescription Expense Assistance Renal Cancer Kidney Disease Nephritis Nephrosis Medical Appointments Transportation Disease/Disability Information
The Florida Chapter disseminates free educational brochures, offers advice and support, provides physician referrals and notifies the general public and professionals about educational seminars and local support groups.
21301 Powerline Road, Boca Raton, FL , 33433
Information and Referral Ulcerative Colitis Crohn's Disease Disease/Disability Information Printed Materials Subject Specific Public Awareness/Education
The Florida HIV/AIDS Hotline offers crisis counseling, information and referral services about HIV/AIDS-related information including locations of testing sites. The hotline provides an extensive database for statewide referrals, as well as, HIV/STD/TB/AIDS information. ###MON###
PO Box 10950, Tallahassee, FL , 32302-2950
Disease/Disability Information AIDS/HIV Issues AIDS Mental Health Hotlines Medical Information Lines Individual Counseling
Provides support and information to families experiencing the tragedy of SIDS; helping parents of SIDS victims understand what is known about this mysterious disease. Provides educational seminars, materials, and other aids for health professionals. Promoting and supporting medical research into the cause and prevention of SIDS and SIDS related issues. Specifically related to: * Sudden Infant Death Syndrome (SIDS) * Sudden Unexplained Infant Death (SUID) * Loss of a child from first...
4300 W Lake Mary Boulevard, Lake Mary, FL , 32746
Infant and Child Safety Education Sudden Infant Death Syndrome Disease/Disability Information Bereaved Parent Support Groups
HIV Info Line: Provides free, confidential HIV care and treatment information to people living with HIV, their families and care providers. Also offers information to help people living with HIV make the best choices regarding their treatment and care. HEP C Info line: Provides a peer-managed toll-free support line for people affected by hepatitis C. Counselors provide information, support, and care linkage services to help callers navigate the complexities of screening, diagnosis...
25 Taylor Street, San Francisco, CA , 94102
Specialized Information and Referral AIDS/HIV Hepatitis Disease/Disability Information
Dedicated to finding a cure for Huntington's Disease (HD) while providing information and referral, support and services for those living with Huntington's Disease and their families. ###MON### ###COL###
505 8th Avenue, New York, NY , 10018
Disease/Disability Information Huntington's Disease Public Awareness/Education Specialized Information and Referral
The U.S. National Cancer Institute (NCI) is part of the National Institutes of Health and the U.S. Department of Health and Human Services. Main responsibilities include coordinating the National Cancer Program; conducting and supporting cancer-related research; training physicians and scientists; and disseminating state-of-the-art information about cancer detection, diagnosis, treatment, prevention, control, palliative care, and survivorship to the public. Publications are provided...
9000 Rockville Pike, Bethesda, MD , 20892
Specialized Information and Referral Cancer Disease/Disability Information
The American Speech-Language-Hearing Association (ASHA) is the national professional, scientific, and credentialing association for more than 173,070 audiologists, speech-language pathologists, speech, language, and hearing scientists, audiology and speech-language pathology support personnel, and students. Professionals can sign up for Continuing Education courses and academic programs. ###MON### ###COL###
2200 Research Boulevard, Rockville, MD , 20850
Specialized Information and Referral Language Impairments Speech Impairments Hearing Loss Disease/Disability Information Speech and Hearing
The National Veterans Services Fund is a not-for-profit organization that provides case-managed social services and limited medical assistance to all veterans (from World War II to present) and their families, with a focus on families. * Offers emergency financial relief for veterans and their families in crisis. * Business partnerships that make it possible to secure services and equipment at reduced rates or at no cost for families in need. * Advocacy in obtaining benefits and...
P.O. Box 2465, Darien, CT , 06820-0465
Specialized Information and Referral Families of Military Personnel/Veterans Veterans Rent Payment Assistance Utility Service Payment Assistance Disease/Disability Information
The Scleroderma Foundation offers the following tools and resources in support of people living with scleroderma and their families: * Has a nationwide network of 24 chapters and more than 150 support groups. * Staff a toll-free helpline providing information and referrals to callers. * Publish a quarterly magazine called "Scleroderma Voice." * Offer a variety of brochures, booklets and newsletters, along with our informative website. ###MON### ###COL###
300 Rosewood Drive, Danvers, MA , 01923
Specialized Information and Referral Scleroderma Disease/Disability Information